My
name is Anne (Zoey's mom). I
would very much like you to
post the photo of Zoey. Being
that she is only 3 weeks old
right now, I don't have much to
write about her.
She is doing really well. She
eats great. She weighed 5 lbs.
7 oz. when we left the hospital
and now weighs 6 lbs. 5 oz.
She had a slow start because
she was only on IV fluids for
the first few days because she
was a little sick.
The geneticist told me that
most babies with 5p- Syndrome
don't live past infancy. That
was a terrible thing to hear.
I can live with the disorder,
but to even think that she
might die was a horror. Then I
found these websites about Cri
du Chat. I realized that the
severity of the syndrome varies
greatly. It was wonderful to
see pictures and read stories
of all of these other thriving
children. I realized that Zoey
is a strong little girl and
will live a good life. My
husband and I have high
expectations of her. She has
no physical ailments and eats
wonderfully. I know that it is
too early to tell what
difficulties she may have, but
we are starting with early
intervention.