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Jessica - 1
year 10 months old
from New Zealand
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March 2002
Jessica was born on 16 Oct 2001, she was diagnosed at
5 days with Cri du Chat. She was 4lb 10oz born and spent about a month
in hospital. Jessica is doing quite well, she has difficulties
feeding and currently has a naso-gastric in place to help her gain
weight more effectively. Every day she gets stronger and stronger, she
is able to roll from back to front, and is making heaps of effort to
sit up and get a better look at things!
Regards,
Fiona (Jessica's
mother)
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Jessica now nearly 2 years old |
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Jessica nearly 2 years old |
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July 2003
Hi there,
It is hard to
believe that Jessica is nearly 2 already! She is a lovely smiley,
happy girl who loves to give everyone cuddles and sloppy kisses.
She had a
gastrostomy and nissen fundoplication done in September of 2002 and
this has helped her growth hugely, she is currently around 10kg. She
receives all her food via the gastrostomy as she has a terrible oral
aversion, and cannot tolerate any food in her mouth. Her development
is coming along very slowly. She is able to sit with support but likes
throwing herself backwards as soon as she thinks that no-one is
holding her anymore. She will lie on her tummy and can lift her head
up but doesn't yet have the strength to push up on to her hands.
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Jessica is usually very happy, although sometimes she has self
stimulating behaviour such as smacking herself on her head or
drumming her heels on the floor. Also she can make herself
vomit on cue.....! She has had hearing aids now for
about 4 months and these certainly make her take more notice of
us.....although they are a bugger to keep in her ears!
Time really has
flown, and although I still worry about the future you really can only
deal with one day at a time.
Kind regards
Fiona Hume
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Email
Fiona
Please note that all first
emails, except for those in other languages, go to the
Co-ordinator of our group and are then forwarded to the intended
family. We have to use this practice to prevent families from
receiving inappropriate email and being inundated by the
constant barrage of Spam emails. If you feel uncomfortable with
your email being read by a third party, keep your first contact
note simple.
After the initial contact is made and received by the parent, we
advise you to exchange emails and continue with private
communication.
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