Ariella’s Story
Ariella was born on the 21 April 2003, eight
weeks premature (32.2 weeks gestation). Her
first five days of life were spent in the
neo-natal intensive care unit of the Mercy
Hospital for Women..
Ariella was unable to breath unassisted which
involved full respiration for two days then half
respiration for the following three days. In
this time the nursing staff noticed her unusual
cry and other physical characteristics, which
lead to a chromosomal test. On the fifth day of
Ariella’s life (Anzac Day) we were told the news
of her Cri Du Chat syndrome. We were in shock
for quite some time, yet my first question to
the doctors was, ‘Does this syndrome lead to
significant health problems?’ Thankfully for
Ariella all the health issues associated with
the syndrome were eliminated.
For the next eight weeks we travelled to the
hospital daily to feed and cuddle our daughter.
Slowly her lungs developed and after six weeks
on oxygen she was able to breath on her own.
Another hurdle we faced was feeding Ariella. As
she was so premature, Ariella found it very hard
to stay awake for a feed and her swallowing
reflex was another obstacle. Ariella was feeding
half by breast feeding and the other by bottle
feeding when we took her home, three days after
her due date.
Now Ariella is a very active and happy six
month-old baby. She still struggles to swallow
and we have noticed development delay in both
communication and motor skills. We are currently
receiving therapy from the special children's
services for both speech pathology and
physiotherapy. We are also looking around for
early intervention for Ariella to start.
Ariella is a very loved and cherished girl from
both her extended family and friends. We would
like to take this opportunity to thank all the
families from this support group. Their
willingness to share their
experiences has helped us to be very positive
about Ariella’s future.
Natalie and Michael