Zoey

Hello Margarette,

My name is Anne (Zoey's mom).  I would very much like you to post the photo of Zoey.  Being that she is only 3 weeks old right now, I don't have much to write about her.  She is doing really well.  She eats great.  She weighed 5 lbs. 7 oz. when we left the hospital and now weighs 6 lbs. 5 oz.  She had a slow start because she was only on IV fluids for the first few days because she was a little sick. 

The geneticist told me that most babies with 5p- Syndrome don't live past infancy.  That was a terrible thing to hear.  I can live with the disorder, but to even think that she might die was a horror.  Then I found these websites about Cri du Chat.  I realized that the severity of the syndrome varies greatly.  It was wonderful to see pictures and read stories of all of these other thriving children.  I realized that Zoey is a strong little girl and will live a good life.  My husband and I have high expectations of her.  She has no physical ailments and eats wonderfully.  I know that it is too early to tell what difficulties she may have, but we are starting with early intervention. 

I'm thankful for these support groups. 

Anne Zettlemoyer