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cdcoz's picture

Family Footy Day

on Sun, 07/27/2014 - 07:09

to the family, friends and supporters
of Kaylei Duffy

for your generosity and attendance
at the Family Football Day
in Romsey, Vic, on June 7th.

As a result of your efforts,

has been fundraised for the

Cri Du Chat Support Group of Australia.

Please check out our list
of supporters and
support them where possible.

 

cdcoz's picture

Family Picnic Day, Brisbane, Feb 2014

on Tue, 01/14/2014 - 02:13

All families are invited to join us for a get together in the All Abilities Pine Rivers Park, at Strathpine, Brisbane. This event will begin at 10am on Sunday 9th February.

Limited refreshments will be provided, so please bring what you need to be comfortable! There is some seating available, but as the eent is in a public park, it is possible that seating will be taken and it would be beneficial to bring a picnic rug or chairs just in case.

We have a few new families coming to this event and we look forward to welcoming them to the group.

cdcoz's picture

Better Start for Children with Disability

on Mon, 11/26/2012 - 02:32

From 1 January 2013, children who are aged under 6 years and have been diagnosed with Cri Du Chat Syndrome will be able to register to access early intervention funding of up to $12,000 (up to a maximum of $6,000 per financial year) under the Better Start for Children with Disability (Better Start) initiative. This is part of a recent decision to expand the funding, which will now extend to include a number of new conditions.

Two of our parents recently attended the official launch of the expansion in Brisbane, with Senator Jan McLucas, Parliamentary Secretary to the Prime Minister and

cdcoz's picture

Website Changes and Weekend Updates

on Sun, 08/26/2012 - 12:10

Due to an increase in content on this site, the navigation menus were modified a little to avoid unnecessary overcrowding. Hopefully you will still be able to find what you need!

Preparations for the The Family Weekend and Conference are going well, with the deposit paid and the registration forms coming in. Thank you to those who have submitted their forms and to those who have booked their accommodation at Sea World Resort. Early confirmation of your attendance is extremely helpful in being able to generate a clear estimate of the number of expected attendees.

All of the information you

HannahG's picture

Family Weekend and Conference, 1-3 March 2013

on Sun, 08/12/2012 - 04:48

The venue and date of the Family Weekend and Conference has been confirmed. We welcome any families who are affected by Cri du Chat Syndrome or other anomalies of chromosome 5 to join us for a weekend of fun, education and celebration from 1-3 March, 2013 at Sea World Resort on the Gold Coast. So far we have had more than 35 families resgister an expression of interest in attending. 

For more information, watch this web site or follow the event via the facebook group.

cdcoz's picture

Gemma's News Article

on Sat, 03/31/2012 - 11:11

Gemma Lister and her family have been doing a wonderful job promoting awareness of Cri du Chat Syndrome in local and national media. Well done, Gemma!!

To view the Herald Sun article, click here.

Here is a photo of their article in Take 5 Magazine earlier in 2012:

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cdcoz's picture

International Cri Du Chat Awareness Week - May 13-19

on Sat, 03/31/2012 - 10:15

A message from the 5P- Society of North America:

The 5p- Society of North America, along with support organizations from Argentina, Australia, Belgium, China, Columbia, Greece, Italy, Japan, Poland, Netherlands, Tobago, Trinidad, Turkey, and the United Kingdom, are proud to announce that May 13 – 19, 2012 will be designated as Cri Du Chat Syndrome Awareness Week.

As most of you know, Cri Du Chat syndrome affects every country, race, gender, religion, political affiliation, and social class.

cdcoz's picture

Queensland Family Day - Saturday 19 May, 2012

on Sat, 03/31/2012 - 09:52

Hi everyone, just following up on our Facebook discussions in support of Cri Du Chat awareness week, May 13-19 - thank you to everyone who has expressed an interest in catching up. We have gone with the idea of Paradise Country, right next to Movieworld, for the morning above. A link is below for more detailed information.

It seems very reasonably priced, relatively small and after discussions seems hopefully to be very friendly and accessible. Tickets can be purchased at the gate and they offer free admission if you have a companion card, or discounted rates if you have a pension card.

cdcoz's picture

An easier way to update information

on Sat, 03/31/2012 - 09:32

Hi everyone,

I am wondering if a blog on this site might make updating information a bit easier for those administering the site (AKA me at the moment, lol, but I am very keen to gather some willing and able helpers!!).

I am going to attmpt adding a few posts and might find that this area replaces the news area. I hope that this won't cause any confusion :).

The blog will basically just allow me to create a newsfeed I hope so if you wish to share any information about your child or events planned, we can add them into the blog for all to see!

 

Hannah

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